The wilds of October, so far

My Facebook page of Top of JC’s Mind is helpfully reminding me that I haven’t posted in 13 days, and that post was a so-far-unsuccessful plea to get from 99 to 100 likes. My last actual blog post was on October 6, so – deep breath – here is an attempt to catch up a bit.

My mom, known here as Nana, has been under hospice care since summer of 2017 due to congestive heart failure. There have been quite a few ups and downs over that time – and quite a bit of red tape. Re-certification reviews are every two months, so, one finishes and it is time to start on data collection for the next.

As it happened, Nana’s current certification was due to expire on October 15. I was due to be out of town from the third through the ninth and thought that the re-certification decision had been deferred until the tenth; instead, the medical director decided on the fourth that Nana would no longer be covered by hospice as of the sixth. Hospice would continue to “follow” her until another suitable, safe situation could be arranged, but we were not given a date.

The situation was complicated by the fact that Nana had been in residence at Mercy House, which only houses people under the care of our local hospice, since May and could not return to her former home in an apartment with my dad, known here as Paco, at Good Shepherd Village (GSV) because her care needs were too great. Anticipating the possibility that Nana might be decertified, we had her on the waiting list for the skilled nursing unit at GSV for weeks, but they had no availability.

As soon as I returned home, it became obvious that we wouldn’t be able to wait for a room at GSV. On Wednesday, the 10th, my first day back, we were offered a room at GSV’s sister institution in the rehab unit, which we basically had to take.

I will not vex you with the details of the bureaucratic wrangling I needed to do to get the move accomplished by Friday. I will, however, say that I was disappointed that I was caught in the middle of so much red tape when so many people in the official-dom had been assuring me for weeks that transferring between institutions would be smooth and handled by the professionals rather than family.

Mom had her evaluations and was starting in with physical and occupational therapy, when, on the following Tuesday, we got word that space had opened up for her at GSV. So, we packed up her room and, on Wednesday morning, she moved again to what should be her permanent home.

We have her settled in her new room, which has a beautiful view of the valley. There are favorite art pieces, cards, and photos on display and a new sized-for-her recliner lift chair that we bought. She is making progress with her therapy and can walk short distances with a walker and a companion nearby.

I wish I could say that her heart function is improved, but that is not possible. Our goal remains to keep her as active as possible for as long as possible and to keep her pain-free. She is under palliative care protocol, similar to hospice but without the pesky obligation of trying to guess life expectancy.

The best aspect of her new home is that she and Paco are back under the same roof, albeit in separate wings. Paco can hop on his scooter and, using the turtle (3mph) rather than prohibited rabbit (5mph) setting, navigate the apartment building halls, Village Center, elevator, and Health Center halls, and be with Nana in just a few minutes. They have been married 64 and a half years, so the ease of being together is much appreciated.

We are trying to establish some new schedules and routines for Nana and Paco after so many changes in such a short time. If I am lucky, I will be able to work through my backlog and get back to writing and posting a bit more. I know better than to make promises, though. The last few years have taught me over and over to expect the unexpected and I think I may have finally learned that lesson.

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One-Liner Wednesday: Bao Phi

“Sometimes not making sense and floating
are the same.”
from the poem “Adrift” by Bao Phi
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Join us for Linda’s One-Liner Wednesdays! Find out how here:  https://lindaghill.com/2018/09/26/one-liner-wednesday-clippity-clop/

“From the Boiler House” in Leaping Clear magazine

I’m pleased to share the link to “From the Boiler House” in Leaping Clear magazine. This videopoem was a collaboration of the Boiler House Poets during our residency at MASS MoCA in October 2016, edited and produced by one of our fantastically talented members Marilyn McCabe. You can hear the voices of the eight poets, each reading her own lines of the poem, with Marilyn’s videography and additional sound from Stephen Vitiello’s installation “All Those Vanished Engines.”

All the poets are happy that our work has found a home at Leaping Clear. Enjoy!

still around

Contrary to appearances, I have not (quite) fallen off the face of the earth.

Since I last posted, I have spent quite a bit of time trying to take care of people who are sick and being sick myself. Luckily, both of my sisters have visited to help take care of Nana and Paco while I was sick.

This week, I need to do a ton of catching up on paperwork and poetry. Before the end of the month, I need to prepare comments on four manuscripts and get my own together to distribute to our group. Fingers crossed that I can get my brain in gear to manage it.

Of course, all of this is happening against the backdrop of the continuing maelstrom of the news. If a television show, novel, or movie followed a plot from the current political news in the US, everyone would dismiss it as too far-fetched. Yet, here we are in a continuing succession of situations that are accurately called unprecedented.

It’s enough to make one’s head spin.

1000 followers!

Today, I reached 1000 followers!

And, yes, usual caveats of how followers does not equal readers, and some people are counted twice if they follow by email or on WordPress and also like or follow my Facebook page, etc.

This does give me an opportunity to thank all the visitors to Top of JC’s Mind, whether you visit once or often, follower or not, commenter or not.

For the record, 1,023 posts since the first on September 13, 2013. I know many bloggers would find almost five years to reach 1000 followers unconscionably slow/lazy/unacceptable, but I am more shocked to have made it this far. I am not one to check stats very often. Or someone who has been able to blog the “right way.” While I have had periods of diligently reading, commenting, and following other blogs both for edification and to garner more readers myself, as life has gotten more complicated, I have had to concentrate on posting myself and haven’t even been able to do that as consistently as I would like.

All this makes me that much more appreciative of my readers, especially the handful that have reached out and told me that it is all okay, that they believe I am worth waiting for. So, I will keep blogging, however imperfectly, with your encouragement.

With thanks,
Joanne

first-time finalist

In December, I submitted to the QuillsEdge Press chapbook contest and I am pleased to announce that I was named a finalist. Though I didn’t win publication of my chapbook, I am thrilled to have made it into the final round.

Moreover, QuillsEdge does a really cool thing! They choose a poem from each finalist and assemble a mini-anthology to accompany the winning chapbook. Given that few of my poems are available in print, I am excited to be included in an actual physical book.

While I assembled the chapbook for the QuillsEdge contest, I have submitted a slightly revised version to four other contests. Two rejections came in prior to the news from QuillsEdge. The remaining two are big contests which will draw lots of entries.

Yesterday, I received another rejection, but it was a very hopeful one. Although I did not make finalist – their top ten – I was in the top 1%. I so appreciated their encouragement, knowing that my chapbook was noticed in a field of 1000+ entries.

When things calm down a bit, I need to research more places to submit, but at least I know that there are editors – plural! – who think I am on the right track. A poet friend told me that a chapbook should be submitted to at least ten presses. Halfway there…

SoCS: initials

Sleeping has not been much of a thing this week, so this SoCS will be short.

Letter makes me think of how I refer to most family members on my blog with a letter. My spouse B, my daughters E and T, my son-in-law L. My granddaughter is extra-special because she gets three letters – ABC!

One of these days, I should update my About page to reflect all the changes.

It’s about 4,872 on my to-do list, so it will probably be a while…
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Linda’s prompt for Stream of Consciousness Saturday this week is “letter.”  Join us! Find out how here:   https://lindaghill.com/2018/05/04/the-friday-reminder-and-prompt-for-socs-may-5-18/