the meaning of January

Linda’s Just Jot It January is designed that anything one jots down can be transformed into a #JusJoJan post of the day.

Fortunately for all of you, I haven’t been taking this literally.

Otherwise, my January would be filled with texts, emails, and long lists of questions and reminders as I have tried to navigate the complexities of dealing with the care of my father, known here as Paco, in the time of COVID.

As the new year began, Paco was nearing the end of a stay in the rehab/skilled nursing unit in the health care center of his senior community, following five days in the hospital in mid-December. We were trying to finalize his move into the assisted living unit, which also triggered the need to close out his independent living apartment as soon as practicable. There were also issues with his medical and personal care to deal with – and, due to COVID restrictions, it all had to be done by phone or email or picking up and dropping off documents and forms and signed permissions, with only occasional in-person contact, none of which could be with Paco.

It’s been, in turns, confusing and frustrating and harried and bureaucratic – and perpetually exhausting.

It’s also been very difficult to write about.

So, here I am, trying once again to sum up the situation and convey it in words, unsure that I am capable of doing so.

A few days before Paco move to assisted living, we noticed that he was struggling with some everyday kinds of things like using the telephone. I expected that an infection he had had had returned and managed to convince the medical team to test for it. It turned out that I was correct but the test results didn’t come back until Paco had already moved to his new place in assisted. He was started on a new medication, but the combination of the infection, medications, being in a new environment, having to do another 14-day COVID quarantine because he had moved to a new unit within the health care building, and not being able to see family or have them help him set up his new place has made an already daunting situation extremely difficult.

I am doing the best that I can to care for him, but it is not good enough and I can’t manage to fix everything in a timely way. I’ve made some progress but the pace has been slow. While I am not by nature an impatient person, after so many weeks of this, I am frustrated and immeasurably sad.

The comfort I have is that Paco is seemingly unaware of all the complexities of the situation. He doesn’t usually remember the things he used to do before this latest illness, so he isn’t really missing them. While his memory is impaired at this point, he has not had the personality changes that affected other members of his family when they developed dementia, so he is generally in a good mood, although his fatigue level does sometimes put a damper on things.

So, here we are, starting another week. There are more lists of things to do, people to call, tasks to accomplish. One big thing that is (nearly) completed is the closing out of Paco’s old apartment. I turned the keys in last week, but the person I needed to interface with wasn’t there, so I’m not entirely sure we’re finished with the process.

Sometimes, people choose a word or phrase for the new year. Perhaps, for me, this will be the year of “not entirely sure.”

Like last year, 2021 may be a year of uncertainty.

what hasn’t changed

The last few years have been challenging for me and my family. As I have written in (many) posts, these personal challenges have been compounded by what is happening in the United States.

As I begin a busy week in caring for my family, the back drop is the horrifying news that United States has passed 20 million confirmed COVID cases with over 352,000 known deaths with COVID. It is immeasurably sad – and infuriating because we could have prevented a large share of these with good public health measures and accessible, timely medical care. There is hope for the coming months with vaccines becoming available and the incoming administration has a good team to improve the national pandemic response.

Unfortunately, the current president and many Congressional Republicans are still trying to prevent the duly elected Joe Biden and Kamala Harris from taking office as president and vice-president on January 20th. Over the weekend, an hour-long recording of a telephone call from the president to the secretary of state of Georgia and his legal counsel was released, in which the president repeatedly pressures and threatens them to change the certified election win of Joe Biden to a win for Trump. On Wednesday, both houses of Congress will meet to count the electoral college votes, which will be 306 for Biden and 232 for Trump. Nevertheless, over a hundred Republican members of the House of Representatives and a dozen Republican senators plan to challenge or vote against acceptance of the count from six states Biden won, including Georgia, Pennsylvania, and Arizona. Given that dozens of court cases alleging fraud or procedural problems with the voting system have already been dismissed and the proper certifications by the states have been done, there are no real grounds for the objections and they will be defeated after hours of debate. That so many members of Congress are willing to violate their oath to uphold the Constitution and US law is frightening and disconcerting and does not bode well for passing needed legislation through Congress.

Yes, the change from 2020 to 2021 did not erase any existing problems, but we need to work toward rectifying them and making life better for people, not devolving into lies and blaming others.

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Join us for Linda’s Just Jot It January. Find out more here: https://lindaghill.com/2021/01/04/jusjojan-prompt-the-1st-fingertips/

January first

I’m generally not a big celebrator of New Year’s Eve/Day, looking at it as just the next day rather than a new start. This year does feel a bit different, as I am grateful to have made it through the tumult of 2020 and have hopes for 2021 for improvements in the governance in the US and for vaccine distribution and better public health policy to finally start to tamp down the pandemic by spring.

Still, personal circumstances make it seem less like a new start and more a continuation of existing issues. My dad, known here as Paco, is expecting to move from the rehab unit of his senior community into the assisted living unit next week. I am busy with paperwork and packing to facilitate the move. It’s awkward because, with COVID restrictions in place, family is not allowed into the health care building where the assisted unit is, so we can prepare and pack but can’t help with the actual moving, unpacking, and arranging.

Ordinarily, I would be gearing up for Linda’s Just Jot It January and planning to post every day for the month. I cannot wrap my head around posting every day this January with so much going on, including the fact that I should get my second dose of shingles vaccine this month. The first dose made me sick for a week, so I expect a similar experience with the second dose. I’m not looking forward to that, but I’ve had shingles before and am anxious to do everything I can to avert a repeat occurrence. When I do post in January, I will link to #JusJoJan, but I am giving myself permission to post sporadically rather than consistently.

I am somewhat uncharacteristically struggling with words, both spoken and written. I think I am overwhelmed enough and exhausted enough that my brain can’t settle down to easily arrange my thoughts into cogent language. It’s not good for my blogging or poetry and it’s disconcerting for conversation, especially when I have to have so many phone calls and conversations to get things arranged for Paco’s care. I’m managing, but nowhere near the level I want to be.

I’m asking, once again, for your patience as I slog through this.

I should close now and make myself copy dates and commitments into my 2021 calendar. It’s a dreaded task every year and 2021 is no different in that regard.