health update

I wanted to give you an update on Nana and Baby ABC.

On Friday, Nana was accepted into hospice care. I now that some people are used to thinking of hospice as a last-days-of-life service, but it is really designed to be an integrated care program over the course of what is expected to be a final illness. It is meant to keep the patient comfortable and as engaged as possible for as long as possible, while also helping the family caregivers.

Nana will have regular visits from a nurse/case-manager, personal care aides, and chaplain. A social worker will be available to help with paperwork and recommendations as needed. A volunteer will arrive to keep Nana company while Paco goes off on his weekly trip to Wegman’s grocery store on the bus from their senior living community. More services can be brought in as needed.

In addition to hospice, we have aides coming in at night to assist Nana to keep her safe and so that Paco – and the rest of the family – can sleep without worrying about her.

Nana has improved over the last few days. It turned out that her oxygen machine that she uses when she sleeps was malfunctioning. Now that it has been replaced with a new unit, she is able to sleep longer and better so that she can have more quality time during the day.

Meanwhile, ABC is two and a half weeks old and doing well. She initially had a bit of jaundice, which is not uncommon in babies, especially those who, like her, arrived a bit ahead of schedule. She had light therapy at home which, along with time, took care of it. At her two-week checkup, her weight was a bit above her birth weight and she is now having a growth spurt and nursing frequently.

It is a joy to watch E and L who are wonderful parents, despite being so new to it. B and I love to snuggle and rock our granddaughter and are finding that our long-unused infant-care skills have reappeared readily.

We especially love being able to take ABC to visit Nana and Paco, who love every moment with their great-grandchild, even though she is often napping during visits.

We expect to see a bit more of her (currently) deep blue eyes in the coming weeks.

SoCS: baby signs

Having a baby in the house again is a revelation.

The last time I was around a newborn extensively was twenty-seven years ago when T was born.

E, L, B and I are all learning to read ABC’s signs.

It seems that every cry, squeak, whimper, wiggle, look, stretch and facial expression is trying to tell us something, if only we could discern its meaning correctly.

So far, ABC is doing well, despite her petite size. She had a bit of jaundice, but we were able to do light therapy at home. Her bilirubin count went down so well that we were able to return the unit yesterday.

It is a joy watching our daughter and son-in-law be such wonderful parents in these early days. It is a privilege to be a first-time grandparent with the baby living in our home for her first few months.

And it warms all of our hearts to see Nana and Paco with the baby, their first great-grandchild. We wish that B’s parents were still alive to meet her, too.
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Linda’s prompt for Stream of Consciousness Saturday this week is “sign.” Join us! Find out how here:  https://lindaghill.com/2017/06/16/the-friday-reminder-and-prompt-for-socs-june-1717/

 

SoCS: update

I admit that I am cheating on SoCS this week. I had a post that I had to write and it could not be stream of consciousness. My family has had a very eventful week. If you are so moved, you can read about it here.

I admit that tears are involved.
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Linda’s prompt for Stream of Consciousness Saturday this week is “admit.” Join us! Find out how here:  https://lindaghill.com/2017/06/09/the-friday-reminder-and-prompt-for-socs-june-1017/

 

Low/high

When I wrote this post in the wee hours of Monday morning, I had no idea what new highs and lows the next twenty-four hours would bring…

At 9:00 AM, Nana and I met with her primary care physician, Dr. T. What began as a discussion of her recent symptoms that had prompted us to be there quickly segued into a discussion of how her numerous health conditions and our treatment plan were not succeeding as we had all hoped, how the trajectory while there were ups and downs was trending downward, and how we needed to discuss and prepare for end-of-life planning.

I cried.

As I am sure you can imagine, or, perhaps, know from your own experience, the discussion was painful and emotional, but I am grateful for Dr. T’s honesty, care, and concern that made it possible for us to consider our options and get the help that Nana and all of us need. Barring a sudden event like a stroke, we are likely to have some unknown number of months with Nana, which we want to make as comfortable and peaceful as possible, as filled with family and friends as her strength allows.

We are starting with getting home care recommenced, but the new goal will be to have therapists and aides to help care for her so that she can conserve energy for fun things, instead of wasting it on mundane things. For example, while a goal of her physical therapy had been to be able to walk down to the dining room at their retirement community for dinner, a new goal will be to get a wheelchair so she can ride to the dining room and have energy to eat and visit with friends.

We expect that there will continue to be some days that are better than others, but we hope to have enough support to keep Nana at home in the apartment she shares with Paco. They have been married for 63 years and belong together!

I spent much of Monday afternoon communicating with family members that needed to know what was going on and wrapping my head around our next steps. E and L took over dinner preparations and we settled in for an evening together watching television. E wanted to watch the Stanley Cup (ice hockey) game and was ensconced on the couch with L, when, a bit before 8:00 PM, she startled all of us with the news that her water had broken.

In short order, there was a call to the obstetrician’s office, the message saying to head to the hospital, the hurried assembling of some supplies, and the four of us driving off to the hospital where we arrived at about 8:30.

E and L headed into the delivery suite while B and I set up in the waiting room, thinking that, given that E had not been having noticeable contractions, they might send us home while she rested for the night and waited for labor to begin in earnest. The reason we thought this might be the scenario is that, when I was pregnant with E, my water broke at 36.5 weeks and it took 26 hours for her to arrive.

And E was also at 36.5 weeks.

This was a different labor-and-delivery story.

Baby arrived before 1:00 AM Tuesday, on the sixth of the month.

E was also born on the sixth of the month.

Baby weighed five pounds, five ounces (2.4 kg) and was eighteen inches (46 cm) long.

E was born at that exact weight and length.

Baby has a full head of hair, as did E, although E was strawberry blond (later changing to golden blond) and Baby has dark hair, like L’s.

E and L named their new daughter Ada. Henceforth, I will likely refer to her here on the blog as ABC, which are her initials, but I did want to share her lovely name with you in honor of her birth.

B and I got to share a little time with the new little family before heading home to catch a few winks before the sun rose. We each got to hold our precious first grandchild and reflect on the parallels between E and little Ada.

One more: Ada, like E, is the first grandchild on both sides of the family.

L was able to stay at the hospital with E and ABC until they came home on Wednesday. On Thursday, they went up to meet Nana and Paco.

Nana and Ada 6/8/17
(Great) Nana and Ada meet for the first time

Maybe Ada was in a hurry to arrive so that she could meet Nana as soon as possible.

I’m sure she will bring us all much-needed joy in the coming months.

Three Mother’s Days

Last year, Mother’s Day was subdued. Neither of my daughters was at home. B’s mom had died only a few weeks before. I was blessed to be able to have brunch with my parents, known here as Nana and Paco, although Nana was already dealing with the congestive heart failure which is still a feature of life taking considerable time and energy.

While Nana’s health is still a feature for Mother’s Day today and we will again be joining Nana and Paco for brunch at their senior living community, we have new and exciting happenings this year. Daughter E is in residence and expecting her first child in a few weeks. Baby will be our first grandchild and Nana and Paco’s first great-grandchild. Daughter T has already sent cards to all three generations from her present home in Missouri. Later in the day, my older sister and her husband will arrive for a few days’ visit and, tomorrow, E’s spouse L arrives for three months and my younger sister arrives to get ready for Nana’s birthday on Tuesday.

Next year, what will Mother’s Day bring? I hope that B and I will again be brunching with Nana and Paco.  It is likely E, L, and Baby will be living in London. T’s position in Missouri is supposed to end in December, but it is possible that she will stay a second year or move on to another position who-knows-where. If my sisters visit again from Nana’s birthday, it wouldn’t be in close proximity to Mother’s Day, which is as late a date as it can be this year.

Whatever happens in the next year, I know that next Mother’s Day will be marked by intergenerational love, no matter what circumstances separate us physically.

seeing the unseen

As some readers will recall, older daughter E is currently living with us while her spouse L, a British citizen, is in London with his family. He will be arriving soon for a three month stay to encompass the final weeks of E’s pregnancy, the arrival of Baby, and the early weeks of cuddling, bonding, and diaper/nappy changing. (Have I mentioned lately how dysfunctional and/or in flux the immigration policies of both the US and the UK are?)

In L’s absence, one of my happy duties is to accompany E to the obstetrician’s office. Fortunately, the pregnancy has been progressing smoothly and Baby seems to be thriving and growing according to schedule.

I was pregnant thirty-one and twenty-seven years ago, so a lot has changed in prenatal care. Fetal heart monitors have gotten a lot more compact and easier to use. There is a lot less belly prodding and measuring than when I was expecting. There are more blood tests and standard glucose testing. My daughter received a booster for diphtheria, tetanus, and pertussis so that Baby will have stronger resistance at birth to help prevent whooping cough until the infant vaccines can kick in.

The biggest change, though, is the use of ultrasound. I never had an ultrasound when I was pregnant. While they were available, they were not yet routine and there was no diagnostic reason to order one. As women had for millennia, I relied on hope and faith that all was well, bolstered by the experienced hands and measuring tape of my health providers.

It has been a revelation to be there for E’s ultrasound exams. Most of the time, we have been able to have L join us via skype, which has been nice. E and I have been able to watch as the technician measures the length of Baby’s femur and the circumference of the head. I have been amazed to see the the entire backbone, tiny fingers and toes, all the chambers of the heart beating over 150 times a minutes, the stomach, the bladder, and other organs. From the last ultrasound, we know that Baby weighs about 3 pounds, 10 ounces (1.65 kg) at 31 weeks. We could even seen some fringe of hair atop Baby’s head, not surprising given that both E and L were born with thick heads of hair.

This last detail was particularly poignant for me, because the first detail we knew about baby E was that she had hair on her head, a fact conveyed to us by the maternity nurse who first examined me at the hospital after I arrived late on a Friday night in April with ruptured membranes at 36 weeks. I was only a centimeter dilated, but she could feel the hair on E’s head as it nestled down, getting ready to enter the world. It wasn’t until the early hours of Sunday morning that we would know the hair was strawberry blonde and belonged to our little girl.

We didn’t know that morning, as we welcomed our first child into the world, how wonderful, complicated, heart-warming, and heart-rending parenting would be. We didn’t know the depths of fear, joy, and love we would experience.

And we didn’t know that, thirty-one years later, we would be on hand to witness that cycle of family begin anew for her and her husband as parents, for B and me as grandparents, and for Nana and Paco as great-grandparents.

Even though it is the most common story in the world, its power isn’t diminished. Love makes the ordinary extraordinary.

Valentines

Happy Valentine’s Day!

As I write this, I have a dessert treat in the oven for this evening and E and L are sharing a Valentine’s Day tea in London. We are happy that they have a chance to spend Valentine’s Day together in this year of being separated by an ocean most of the time.

It is also the birthday of one of my cousins. His mom, one of my dad’s sisters, always wanted a son born on Valentine’s Day and she got her wish.

Unfortunately, she couldn’t have another child because she was Rh negative and her son was Rh positive. Because she was now sensitized to Rh factors, her antibodies would have attacked the blood of another Rh positive child. If the baby survived, it would have needed an immediate total blood transfusion. Most couples in those circumstances chose not to risk a second pregnancy.

Like my aunt, I am Rh negative, but I was fortunate to be pregnant after the development of RhoGAM. I had one shot during pregnancy and a second after I gave birth to E, who is Rh positive, so that I would not develop antibodies to Rh factors. This enabled me to later have daughter T without risk to her blood.

Valentine’s Day is another day to be thankful for family and for good medical care.