JC’s Confessions #4

On The Late Show, Stephen Colbert does a recurring skit, now a best-selling book, called Midnight Confessions, in which he “confesses” to his audience with the disclaimer that he isn’t sure these things are really sins but that he does “feel bad about them.” While Stephen and his writers are famously funny, I am not, so my JC’s Confessions will be somewhat more serious reflections, but they will be things that I feel bad about. Stephen’s audience always forgives him at the end of the segment; I’m not expecting that – and these aren’t really sins – but comments are always welcome.
~ JC

In the months that my mom was in the skilled nursing unit, she had a couple of neighbors who used to shout out “Help me!”over and over to anyone passing by their rooms. There were also a handful of residents who would occasionally wander into her room and mistake my dad for their husband or me for a daughter or a staff member.

It was hard for me not to get annoyed sometimes, even though I knew that these other residents were ailing and exhibiting dementia symptoms.

As I reflected more about this, I realized that my reactions were tied to feeling helpless. I couldn’t help what was happening to these other residents and I couldn’t help what was happening to my mom.

As a caretaker, one is always trying to make things better. It hurts when that isn’t possible.

Advertisements

blue Christmas

Several years ago, I attended a Blue Christmas service, led by a pastor-friend. It is a service during Advent to help those who are experiencing loss or struggles, acknowledging that the Christmas season is difficult in their circumstances.

It would have been beneficial to attend such a service this year.

I have been preoccupied with caregiving responsibilities and concerns over these last months, which don’t pause just because it is December. I outsourced nearly all the Christmas preparations to my family, even sending holiday cards and letters, which has long been one of my highest priorities. I couldn’t make myself try to sum up what has been a complex year, so spouse B and daughter T wrote a letter instead.

One of the blessings of this year, though, has been that our Christmas celebration has been elongated, starting with St. Nicholas Day on December 6th, which we observed so that we could celebrate with daughter E and granddaughter ABC before they left to spend several weeks with son-in-law L and his family in London. My older sister and her husband came to visit weekend before last. T and I attended Christmas Eve mass at 6:00 last night, with the instrumental ensemble and choir and the handbell choir. T loves handbells and ringing, so it was wonderful to hear them, especially with the new addition of handchimes.

On this Christmas morning, we opened stockings and a few presents, given that we already did stockings and gift exchange for St. Nicholas Day. We will have dinner at noon with Nana and Paco, bringing Nana over from her room in skilled nursing to the main dining room for the holiday buffet, as we did at Thanksgiving. Tomorrow, my younger sister and her family will arrive for a couple of days.

Still, it is difficult for me to feel festive. It’s hard to marvel at the wonder of the Incarnation while thinking about logistics and everyday details.

Perhaps, that is the message, though. The wonder of the Incarnation is that it arrived by everyday means, the birth of a child in complicated circumstances, something that happens around the world every day.

Perhaps, I can take that message into my own heart today, reminding myself that the spirit of Love is within and around us in our everyday experiences, if we only reflect and notice.

Wishing that spirit of Love to each of you,
Joanne

The wilds of October, so far

My Facebook page of Top of JC’s Mind┬áis helpfully reminding me that I haven’t posted in 13 days, and that post was a so-far-unsuccessful plea to get from 99 to 100 likes. My last actual blog post was on October 6, so – deep breath – here is an attempt to catch up a bit.

My mom, known here as Nana, has been under hospice care since summer of 2017 due to congestive heart failure. There have been quite a few ups and downs over that time – and quite a bit of red tape. Re-certification reviews are every two months, so, one finishes and it is time to start on data collection for the next.

As it happened, Nana’s current certification was due to expire on October 15. I was due to be out of town from the third through the ninth and thought that the re-certification decision had been deferred until the tenth; instead, the medical director decided on the fourth that Nana would no longer be covered by hospice as of the sixth. Hospice would continue to “follow” her until another suitable, safe situation could be arranged, but we were not given a date.

The situation was complicated by the fact that Nana had been in residence at Mercy House, which only houses people under the care of our local hospice, since May and could not return to her former home in an apartment with my dad, known here as Paco, at Good Shepherd Village (GSV) because her care needs were too great. Anticipating the possibility that Nana might be decertified, we had her on the waiting list for the skilled nursing unit at GSV for weeks, but they had no availability.

As soon as I returned home, it became obvious that we wouldn’t be able to wait for a room at GSV. On Wednesday, the 10th, my first day back, we were offered a room at GSV’s sister institution in the rehab unit, which we basically had to take.

I will not vex you with the details of the bureaucratic wrangling I needed to do to get the move accomplished by Friday. I will, however, say that I was disappointed that I was caught in the middle of so much red tape when so many people in the official-dom had been assuring me for weeks that transferring between institutions would be smooth and handled by the professionals rather than family.

Mom had her evaluations and was starting in with physical and occupational therapy, when, on the following Tuesday, we got word that space had opened up for her at GSV. So, we packed up her room and, on Wednesday morning, she moved again to what should be her permanent home.

We have her settled in her new room, which has a beautiful view of the valley. There are favorite art pieces, cards, and photos on display and a new sized-for-her recliner lift chair that we bought. She is making progress with her therapy and can walk short distances with a walker and a companion nearby.

I wish I could say that her heart function is improved, but that is not possible. Our goal remains to keep her as active as possible for as long as possible and to keep her pain-free. She is under palliative care protocol, similar to hospice but without the pesky obligation of trying to guess life expectancy.

The best aspect of her new home is that she and Paco are back under the same roof, albeit in separate wings. Paco can hop on his scooter and, using the turtle (3mph) rather than prohibited rabbit (5mph) setting, navigate the apartment building halls, Village Center, elevator, and Health Center halls, and be with Nana in just a few minutes. They have been married 64 and a half years, so the ease of being together is much appreciated.

We are trying to establish some new schedules and routines for Nana and Paco after so many changes in such a short time. If I am lucky, I will be able to work through my backlog and get back to writing and posting a bit more. I know better than to make promises, though. The last few years have taught me over and over to expect the unexpected and I think I may have finally learned that lesson.

father, farmer, and builder

This week, my daughters and I sang in the choir for the funeral of our friend Nancy’s dad. Nancy is a long-time church musician and liturgist, so many current and former choir members and friends arrived to support her by participating in the liturgy. We had 43 singers and 3 instrumentalists. The music was a beautiful and meaningful part of our prayers for Joe and being surrounded by so many musician-friends helped Nancy to play the funeral mass.

I know from personal experience how difficult it is to play for a loved one’s funeral or memorial. Because you have to concentrate on doing your job musically, some of the mourning that one would typically do at a funeral is deferred. My hope is that the memory of the music we shared will be a comfort to Nancy when she reflects on the funeral in the coming days.

The reflections offered centered around Joe’s roles in the community as a father of five children, a farmer in his younger years, and then a long-time builder of homes in our area. Each of these roles has many scriptural and faith references which were woven throughout the liturgy.

It was my privilege to write the universal prayer for the funeral. I served on the liturgy committee with Nancy for many years in our former parish and learned so much from her; I was honored that she asked me to write the petitionary prayer that closes the liturgy of the word.

Nancy and I have been supporting each other through an extended period of multi-generational family caretaking. Strangely, some of our most stressful periods have coincided. Fifteen years ago, I was staying at the hospital with one of my daughters when Joe had a serious stroke following heart surgery. I missed Nancy’s mom’s funeral when my mom had a heart attack while my dad was in the hospital for surgery. Now, Joe’s final illness and death happened while my mom is in a hospice residence.

I am truly thankful for Nancy’s support, friendship, and gracious example. I pray for solace and peace for Nancy and her family. Rest in peace, Joe.

flowers from Joe's funeral luncheon
Joe’s favorite color was blue, so there were blue hydrangeas and white roses on the tables at the funeral luncheon.