DT and COVID

As I’m sure the whole world knows, the president of the United States is hospitalized with COVID-19. It’s been a bit difficult to get the straight facts on his condition, but it is increasingly looking like his case is on the more severe side.

He does have multiple risk factors, including his age, gender, and weight. He is being treated aggressively by his medical team, including with an experimental antibody treatment and with remdesivir. These are both given early in the course of the disease to help the body fend off the virus.

Today, though, it was revealed that the president is being given the steroid dexamethasone, which is usually given only to more severe cases later in the disease course, when there are significant lung complications and/or the need for a ventilator.

The medical team is even talking about the possibility of discharging him back to the White House, which does have its own sophisticated medical unit, tomorrow.

This doesn’t seem to add up. If his condition warrants dexamethasone, it would seem best to keep him in the hospital for close observation.

Another concern is that days seven through ten of COVID often see an exacerbation of symptoms. The president is only on day four. It seems it would be much safer to keep him in the hospital. It’s not as though he is cramped for space or lacking amenities in the presidential suite at Walter Reed; besides medical care, it also has its own secure conference room and kitchen/dining space.

I also wish that the president would temporarily sign over powers to Vice-president Pence in accordance with Article 25 of the Constitution. We know that the president has suffered with a high fever and times when his blood oxygen level has dropped below normal. COVID is nothing if not unpredictable. Foreign powers could take a provocative action, surmising that the president would not be well enough to respond appropriately. I think it would be safer for the country to have the vice-president, as long as he remains well, exercise the presidential powers until the president is fully recovered. Pence can always confer with president when his symptoms are well-controlled, but he would have the power to respond on his own if the president were to be unwell when a crisis arose.

The president and First Lady’s illness with COVID would be problematic enough, but a number of senators and other government and campaign staff and advisors have also been infected or exposed. Because the incubation period can extend to fourteen days, there are many people who should be in quarantine to make sure they don’t expose others while pre-symptomatic or asymptomatic. Somehow, despite the seriousness of the situation, Sen. Mitch McConnell plans to push ahead with the confirmation hearing of Amy Coney Barrett to the Supreme Court. He considers that worth the risk, while he won’t put the latest House-passed coronavirus relief package up for a vote.

Voters, pay attention to how candidates on your ballot are handling this health and governmental crisis. Are they prioritizing your and the country’s health and well-being or their own power?

on the way out of town

This is the final post about my long weekend in Northampton, Massachusetts to sing Brahms at Smith College.

I was up early for breakfast with CK as my plan was to attend 8:00 mass on my way home. As in many other places, the Northampton-area Catholic churches have consolidated, so I was not very familiar with the church building itself.

As a former organist and church musician, I always pay particular attention to preludes and all the music. The organ was in a loft, so I couldn’t see the musicians. I noticed that there were mistakes in the prelude, but that isn’t uncommon, especially at early masses at Catholic churches, which sometimes fall to student organists or people who are trained as pianists rather than organists.

The cantor/songleader was also in the loft and announced the opening hymn, “Holy, Holy, Holy” – a very familiar hymn that is usually one of the first an organist learns. The introduction started as one expects but became increasingly atonal, ending in a cluster chord that was held for much longer than expected.

The voice of the cantor came over the microphone, asking for a doctor to come to the loft. A woman in the section of pews in front of me jumped over the back of a pew to reach the aisle more quickly and rushed to aid the organist.

The chord on the manuals stopped, although a bass note from the pedals remained. We could hear the parishioners who had gone to the loft asking questions, trying to get a response.

I’m sure I was not the only person in the congregation who immediately began praying.

After a couple of minutes, the priest came to the front of the church and led a “Hail Mary” for the organist. He told us an ambulance was on the way and that we would begin mass shortly. He said that she would be okay, although I am not sure how he could have known.

The organist’s name is Jeanne.

At some point, the long-held pedal note stopped, a bell rang from the front of the church, and we began mass.

You could hear the ambulance squad arrive and enter the loft. Jeanne must have still been on the organ bench because there was a pedal glissando as they lifted her off.

Between readings, an usher came to the front of the church and spoke to the priest, who excused himself and went back to her before she left for the hospital.

We continued the mass with no music. It turned out that it was the last weekend for the relatively-young-as-Catholic-priests-go pastoral associate who was being re-assigned to Pittsfield.

We did sing a verse of “Holy God, We Praise Thy Name” as he processed out to greet his parishioners for the last time.

It’s been two weeks now since that day. I read the bulletins and the church’s website for some mention of Jeanne, but there was none. I hope that the priest was correct – that she really was okay.

 

triple threat

My mom, known as Nana here at Top of JC’s Mind, has been having some cardiac issues and has been going to rehab twice a week. Last week, she had to miss because of the giant snowstorm and because she seemed to be suffering from a cold.

She had already been to the walk-in medical clinic once for her cough, but on Friday, her condition worsened, so she went back. They were concerned that she might have developed pneumonia so they ordered a chest X-ray from the hospital. The plan had been for her to stay at the hospital until the X-ray was read, but they were so busy, we had to take her home to wait for the results the next morning.

When the X-ray came back positive, we went back to the hospital. We spent the day in the emergency room, while they ran more tests. We were shocked that Nana’s “cold” had actually been type A influenza. The extra-strength flu vaccine that she had received last fall had kept down the usual fever and body aches that one expects from flu.

The other factor involved was some continuing problems with congestive heart failure symptoms. We are hoping to get a better understanding of the cardiac factors involved so we can chart the best possible course going forward.

Nana has been improving steadily with intravenous antibiotics and diuretics. We are hopeful that she will be able to come home in a few days, in time for Paco’s 92nd birthday this weekend.

We would all appreciate any healing thoughts and/or prayers that you might send out on Nana’s behalf.

 

Nana on her way home!

Many thanks to all those who have been keeping my mom, known here as Nana, in their thoughts and prayers as she has been in New York City for an aortic valve replacement.

I am happy to report that she is on her way home! As often happens with heart procedures, while the TAVR procedure went well, one thing led to another. First, there needed to be a temporary pacemaker, which then needed to be replaced with a permanent one. She developed a bit of a-fib, which required some new meds and a re-jiggering of blood pressure meds. The next things we knew, what we had thought might be a three day hospital stay turned into eight.

We are happy that she is doing well and looking forward to having her back in town. She will need to rest and has a program to start exercising to get her back to her usual activity schedule, but she is doing so, so, so much better than when she was having congestive heart failure symptoms.

We are very grateful to the medical team that made it possible. I am also very grateful to my sisters and their husbands who have been on hand down in NYC to help both Nana and Paco at this stressful time.

Here’s to hearts that are healing!

One-Liner Wednesday: Thanks

Sending thanks to all those who have been keeping my mother Elinor in their thoughts and prayers; she is due home from NYC tomorrow with her new heart valve and a bonus pacemaker.
*****
This sequel to last week’s One-Liner Wednesday is brought to you by Joanne, with additional thanks to Linda. Join us for One-Liner Wednesday! Find out how here:  https://lindaghill.com/2016/10/19/one-liner-wednesday-presidential-poop/

#1linerWeds badge by nearlywes.com

waiting

As many of you know, my mom, known as Nana here at Top of JC’s Mind, is having an aortic valve replacement procedure today. I am in the unaccustomed position of waiting at home instead of in the hospital.

My two sisters and my dad are waiting at Columbia (New York-Presbyterian), so she has plenty of support and on-site vigilance. I am holding down the fort here, getting ready to spread news to all the local folks and more far-flung family and friends after the procedure is complete.

And waiting…

Some people expressed surprise that I was not going down to New York City, too. As the local daughter, I have been the go-to person for all the prior medical goings-on with Nana and Paco, as well as with my mother-in-law, now deceased, my spouse, and my daughters.  And I haven’t regretted a moment of it.

Still, I admit that it is less stressful to be here in my den at my computer desk typing away than being in a waiting room a couple of hundred miles from here.

It’s cutting down on the recycled waiting-anxiety.

The most difficult solo waiting room experience I ever had was the day that my dad was in for hernia surgery and my mom had a heart attack and was simultaneously having a heart catheterization and stent placement.

Being with someone doesn’t necessarily make it easier, though. I think both B and I struggle with waiting in hospitals right now because six months ago we shared a heartbreaking wait in the CICU while the staff tried unsuccessfully to revive his mom, known here as Grandma.

I am finding that being here at home, though, with the company of daughter T, is making it easier to wait and to keep realistic. The procedure the doctors are using, called TAVR, is not much different than a heart catheterization. Sitting here at home, I don’t know when the procedure will begin or how long it is anticipated to take. I do know from past experience that you always need to allow a lot of extra time beyond what they tell you, as they usually quote the actual procedure time, not the hours of preparation and recovery that need to be factored in before word gets out to the waiting family members.

It is a lot easier to sit here and think that, with a 10 AM report time, I won’t likely hear that she is done with the procedure until the middle of the afternoon.

I know that many of you have Nana in your thoughts and prayers. You are on my list of contacts when there is news.

Thank you for your support.

Peace,
Joanne

 

Progress

Yesterday, Nana had her evaluation at Columbia’s Structural Heart & Valve Center.

We had arrived in NYC the day before, expecting a three to four hour evaluation beginning at 9:00 AM. What happened was a marathon of testing and consultation that stretched from our arrival at 7:15 AM to 6:00 PM when we finally finished.

All the effort to go to New York City was definitely worth it. The advanced testing they were able to do determined that only the aortic valve needs to be replaced at this time, which can be done using a heart catheter technique, called Transcatheter Aortic Valve Replacement (TAVR). They were able to schedule the procedure for mid-October.

We were so impressed with all the medical professional and support staff. They were caring and compassionate, as well as being knowledgeable and experienced. Because we came from a distance, they did not only the diagnostic testing they needed to do but also the pre-admission testing so that there will only have to be two trips down to New York.

Tomorrow, I leave for a long-planned reunion residency of the Boiler House Poets at MASS MoCA. I feel much better going knowing that we have a positive plan in place for my mom. As I did for the original residency last November, I hope to blog every day from North Adams, so stay tuned.

 


	

April 8

I am going to preface this post with the statement that Nana is doing well, so as not to cause anyone undue stress.

On Friday, April 8th, my plan was to do a couple of things at Grandma’s cottage, which we were working on cleaning out, have lunch with a friend, and then head to Syracuse to bring daughter T home for the weekend, which would be her first time home since Grandma died on March 22nd.

A few minutes after I arrived at the senior community, my cell phone rang. It was my mom (Nana) calling from the emergency room. She had collapsed in the waiting room of a medical building across the street from the hospital. The rapid response team had done a couple of rounds of CPR on her and she was in the emergency room for monitoring and tests.

I used the speakerphone to tell B what was happening. He made arrangements to go to Syracuse to get T. I left messages for my friend not to expect me for lunch. Meanwhile, I drove to the hospital.

I was lucky to find a parking space in the visitors’ lot and rushed up the hill toward the emergency entrance, a cold wind blowing directly into my face, making it difficult to catch my breath. After an unusually mild winter, we had a couple of cold snowy weeks once spring had officially arrived.

Once I was able to get through the line and behind the locked doors of the ER, the wait was on. An EKG was done. The heart monitor was tracing green lines across a screen above Nana’s head. Blood was drawn for tests. They took Nana down for a chest X-ray. There was a line started in her arm, although she wasn’t hooked up to any intravenous fluids. She wasn’t allowed to eat or drink. We were talking to pass the time. The ER became increasingly busy and noisy.

Nana was having some pain in her back and chest. The nurse told us it was from the CPR. A small price to pay from having been brought back from death…

Several hours later, the physician assigned to her case came in. Nana was not dehydrated. Her electrolytes were fine. She hadn’t had a heart attack.

In fact, her heart had not stopped at all.

She had fainted, mostly likely from a combination of cold, wind, walking too quickly uphill in the morning when her medications tend to drop her blood pressure.

We were grateful that she was okay, although I admit that I have been struggling with the fact that a highly trained medical team missed her pulse and performed CPR when they should have been reaching for the smelling salts.

This was especially difficult as she has had to deal with a bruised chest and ribs over these following weeks. It was all unnecessary.

For me, it was also an extra measure of fear that pushed me within a hair’s breadth of melting down. I have been working hard at keeping myself functional during this stressful time. For a few hours, I felt as though I might not be able to cope with an added crisis.

Thank God that Nana and the rest of the family were spared what could have been so much worse.

 

 

 

Shock

On Monday, I posted about some re-prioritizing I was doing here at Top of JC’s Mind as I prepared for a busy spring.

Somewhere, the Fates were snickering behind their hands.

Monday afternoon, I wrote poetry with my friends at Sappho’s Circle. Just as I was preparing to drive home, I got a call from B. He was at the hospital, waiting while his mother, known here as Grandma, was in the heart catheterization lab. She had had a heart attack.

I was not far from the hospital and got there as quickly as I could to wait with him.

The cardiologist was able to remove the blood clot that had caused the heart attack; there was no need for a stent. The nurses got her settled into the cardiac intensive care unit and we were able to spend several hours in her room, as she gradually woke from the sedation and B and I answered dozens of medical history questions on Grandma’s behalf.

We left the hospital at about 8:00 PM, with Grandma stable and resting under the watchful eyes of the ICU staff. We all expected a few days in the hospital, maybe a short stay in rehab, and then back to her cottage at her senior living community.

We didn’t sleep well. At 6 AM, B’s cell phone rang. Grandma’s blood pressure had dropped, but they had been able to raise it back to an acceptable level. Then, she became short of breath, but it was difficult to address it. They might need to put in a breathing tube as a short term measure. We dressed and headed to the hospital. It turned out that, as we were en route, Grandma’s heart had stopped.

We waited near the nurses’ station as they continued efforts to revive her, but they were not able to.

Less than 24 hours after her heart attack, Grandma had died.

Shock.

There just isn’t any other word for what we have all been feeling since that moment. Everyone that we have had to tell, everyone who has spoken to us, we are all in shock. “But I just saw her at the movie on Friday.”  “But she was here Monday morning, after her PT session.” “But she was at dinner with her friends on Saturday.”  No one quite seems to be able to wrap their brains around the fact that death can be so quick.

Everyone is grateful that there was not a long period of pain and suffering. It was one of the things that Grandma had feared the most. She loved her cottage in the retirement village and did not want to leave it to live in the Health Center. We are grateful that she did not have to do that.

But we are still in shock.

And we are sad.

B and I have been doing our best to talk to people and deal with paperwork and start sorting and make lists and not miss anything that is important to do.

It’s been less than 72 hours at this point, but it feels so much longer. I have to remind myself what day it is.

And that it is Holy Week for most Christians, including my denomination.

As I write this, it is very early on Good Friday morning.

I had tried to sleep, but couldn’t, so I got up to write this.

Before I go to bed, I want to go to the website for my friend Angie’s memorial fund. It has been eleven years since she died. In 2005, March 25th was also Good Friday.

I don’t quite understand why I am not crying.

It must be the shock.

waiting is hard work

I haven’t been posting much this week because I have been busy helping my dad, known here as Paco, and my mom, aka Nana.

Paco’s doctors had been keeping an eye on a partial blockage in one of his carotid arteries and his last ultrasound revealed that it had reached 70%, which is considered time to intervene.

So, on Wednesday, I brought my parents to the hospital for Paco to have carotid angioplasty with possible stenting.

After a morning of doing bloodwork, starting IVs, and asking more questions than you would think possible, the team was ready to begin.

Nana and I waited in the coronary care waiting room because Paco’s procedure was taking place in the same kind of catheterization lab that is used for heart vessel procedures.

It was the same room in which I sat alone in July 2014 when Nana was in the cath lab while Paco was in surgery.

Not my particular favorite place to be.

After an hour, a nurse came out to tell us that a stent would be needed, which would take another hour.

So, we waited some more…

I was using the hospital’s wi fi to read email and such to keep occupied. A rejection notice came through from a submission that I had sent for expedited review. I should have heard back over two weeks ago and had been anxiously awaiting hearing from the journal. Under other circumstances, I might have been upset by the rejection, but, current priorities and perspective definitely put my reaction in its proper place.

We waited for the second hour we expected – and for most of the next hour, too. Nana was very anxious that something had gone wrong. I tried to be reassuring, knowing that things often take more time than anticipated and that informing the family takes a back seat to caring for the patient, but I don’t think I was very successful.

Happily, a nurse came out and said that he was all set and doing well. We got to see him for a moment in the hall before they took him to his room in the ICU, which is best equipped to monitor the heart and other vital signs after these kinds of procedures. They were supposed to come get us after they got him settled.

After a few more minutes, the doctor came out to speak to us and explain some details.

Then, we waited and waited and waited some more.

When we could finally visit in his room, we waited for his nurse to get back to go over more paperwork and for other practicalities like ordering Paco some dinner.

When Nana and I finally left after having been at the hospital almost eight hours, we were both exhausted.

Waiting is hard work.

Postscript:  Paco stayed overnight and was released around 1 PM the next day. We are all still tired and trying to get back on track. And we have to change the clocks for daylight savings time tonight. Goody.