long COVID and ME/CFS

One of the fears that I have about COVID is the risk of experiencing long COVID, where any number of a vast constellation of symptoms occurs for months/years after the acute infection phase.

The symptoms are very similar to those that characterize ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). I have a family member with ME/CFS, so I am achingly familiar with the level of disability that can result. ME used to be referred to as fibromyalgia in the US, but now the ME designation is more common.

The October 5, 2022 edition of the (US) National Public Radio show On Point features an extensive discussion of long COVID and ME/CFS and how long COVID researchers and clinicians are learning from their peers who have been working for years on ME/CFS. All of these conditions are underdiagnosed and undertreated, so I wanted to share this with all of you. I believe this link will permanently take you to a recording of the episode. If the link breaks, you can try searching from the On Point link above or searching on your favorite podcast platform.

Anyone who has experienced these conditions or seen a loved one contend with them knows how difficult they can be. I want to raise awareness so that everyone affected can get the help they need. I also want everyone to realize that these conditions exist and are serious. Too often, affected people are dismissed and told their symptoms are “all in their heads.” While there is still much to learn, help is available, although it may be difficult to find, depending on the medical resources nearby. I hope we will all support research and treatment expansion so that the millions of people affected get the help they need.

Pfizer vaccine approval

Today, August 23, 2021, the United States Food and Drug Administration has announced the full approval of the Pfizer/BioNTech vaccine against SARS-CoV2, the virus that causes COVID-19, for people aged 16 and up. People aged 12-15 are still being immunized under the emergency use authorization. It is also expected that, in the coming weeks, Pfizer will apply for emergency use authorization for children aged 5-11. Research is ongoing on children 6 months-4 years. Also, most adults will become eligible for a third dose to boost immunity, given from 8-12 months after the second dose.

Meanwhile, both Moderna and Johnson & Johnson, the other two vaccines available under emergency use authorization in the US, are continuing their research and applications to expand their age ranges and gain full approval, too.

It’s possible that, for some people who have been reluctant to be vaccinated, the full approval of the Pfizer vaccine might be enough to convince them to receive it. The US has seen many more shots being administered in recent weeks as the delta variant has surged and people realize that nearly all the people being hospitalized and dying are those who were unvaccinated. Unfortunately, it takes several weeks to build immunity from the vaccine so the delta surge will likely continue into the coming months.

The other expected impact of the full approval of the Pfizer vaccine is that more employers may mandate that their workers be immunized before returning to in-person work and more businesses may require immunization (or alternatively a recent negative test) for their patrons.

As regular readers may remember, my spouse B, daughter T, and I are all part of the Pfizer Phase III trial for the vaccine. B and T were lucky enough to receive the actual vaccine in August 2020 while I wound up being in the placebo group. When the vaccine received emergency use authorization, the study was unmasked so that people in the placebo group could receive the vaccine, which I did in February 2021. I will continue to be followed as part of the original study through August 2022. B and T, meanwhile, have entered into the third dose phase of the study. They will be providing data for the continued study of how much immunity boost occurs with the third dose and how long it lasts.

I continue to mourn for all those who are suffering as a result of the pandemic. Please, everyone, listen to the public health specialists in your area, receive the vaccine as soon as it is available to you, and mask, distance, and wash hands as directed. Please, do everything you can to protect the health of yourself, your loved ones, and your community.

Songbird smarts

Thanks again to Steph of Partial Ellipsis of the Sun for another fascinating post! Here she writes and posts lovely and informative pictures on songbirds, their songs, and the brains behind it all:
https://wordwomanpartialellipsisofthesun.blogspot.com/2017/05/birdsong-and-creativity-songbirds-name.html
At the moment, we have a robin’s nest resting in the crook of the downspout near our back door. No eggs yet, but we’ll see.

Earth Day and Science March

Happy Earth Day! Sending out good thoughts to all those working in the environmental movement, to the earth itself, and to all its inhabitants. Earth Day this year was chosen as the day for the March for Science, with the main march being in Washington DC, with satellite marches around the country and the world.

It’s sad that we need marches to remind us of the importance of science and of protecting our environment, but there are definitely some people who need reminding. The science march emphasizes the importance of scientific research and advances and of scientific education and literacy in the general public, while celebrating the contributions of science to our world, particularly the contributions of those who have been traditionally underrepresented among scientists, such as women, indigenous people, African-Americans, and Latino/as.

In that spirit, I want to honor two scientists in my family.

First, my older sister who has just retired from decades of work as a research scientist at the National Institutes of Health.  She holds a bachelor’s degree in chemistry from Rensselaer Polytechnic Institute and a master’s and doctorate from Indiana University.  After post-doctoral work at the Cleveland Clinic, she came to NIH for the remainder of her career, where she worked on projects to add to our knowledge of how to fight disease and promote wellness. Today, she participates in the Science March in Washington, DC.

Second, my younger daughter T. She holds a bachelor’s degree from Cornell University and last year completed a Master’s of Professional Studies in conservation biology of plants at State University of New York – Environmental Science and Forestry. She is passionate about plants and hopes to build her career around restoration ecology. Nothing makes her happier than pulling out invasive species so that native plants can thrive! Right now, she is working in Missouri for their Department of Conservation with a study of the effects of fire on prairie plants. She is marching for science in Springfield, Missouri.

I am proud to have these two women scientists in my immediate family! I appreciate their contributions and that of their colleagues across all scientific fields.

I think today is a good day to reflect on how important science is to our lives. Medical science and biology are important in decisions I make every day. I am especially drawn to environmental science and geology and often use that knowledge in my advocacy on environmental and climate change policy and renewable energy. Computer science makes B’s job possible. The list could go on and on…

There is a Sci/Cli March today in Binghamton, a local mash-up of this weekend’s science march with next weekend’s climate march. I had hoped to attend, but I don’t think I will be able to make it. I’ll be marching with them in spirit, as well as with my sister in DC.

Science rules!