waiting

As many of you know, my mom, known as Nana here at Top of JC’s Mind, is having an aortic valve replacement procedure today. I am in the unaccustomed position of waiting at home instead of in the hospital.

My two sisters and my dad are waiting at Columbia (New York-Presbyterian), so she has plenty of support and on-site vigilance. I am holding down the fort here, getting ready to spread news to all the local folks and more far-flung family and friends after the procedure is complete.

And waiting…

Some people expressed surprise that I was not going down to New York City, too. As the local daughter, I have been the go-to person for all the prior medical goings-on with Nana and Paco, as well as with my mother-in-law, now deceased, my spouse, and my daughters.  And I haven’t regretted a moment of it.

Still, I admit that it is less stressful to be here in my den at my computer desk typing away than being in a waiting room a couple of hundred miles from here.

It’s cutting down on the recycled waiting-anxiety.

The most difficult solo waiting room experience I ever had was the day that my dad was in for hernia surgery and my mom had a heart attack and was simultaneously having a heart catheterization and stent placement.

Being with someone doesn’t necessarily make it easier, though. I think both B and I struggle with waiting in hospitals right now because six months ago we shared a heartbreaking wait in the CICU while the staff tried unsuccessfully to revive his mom, known here as Grandma.

I am finding that being here at home, though, with the company of daughter T, is making it easier to wait and to keep realistic. The procedure the doctors are using, called TAVR, is not much different than a heart catheterization. Sitting here at home, I don’t know when the procedure will begin or how long it is anticipated to take. I do know from past experience that you always need to allow a lot of extra time beyond what they tell you, as they usually quote the actual procedure time, not the hours of preparation and recovery that need to be factored in before word gets out to the waiting family members.

It is a lot easier to sit here and think that, with a 10 AM report time, I won’t likely hear that she is done with the procedure until the middle of the afternoon.

I know that many of you have Nana in your thoughts and prayers. You are on my list of contacts when there is news.

Thank you for your support.

Peace,
Joanne

 

SoCS: three dates

My mother – known as Nana here at Top of JC’s Mind – needs a diagnostic heart catheterization as follow-up to this fainting episode and likely prelude to heart valve replacement surgery.

The date of the heart cath was supposed to be June 28.

The week before, she had to have blood work done and the cardiologist didn’t like some of the numbers, so he cancelled it.

After weeks of doctor visits and tests, she was cleared to proceed.

The next date was August 17.

Unfortunately, the day she had to have the pre-procedure blood draw, she developed shortness of breath and wound up in the hospital overnight with a new diagnosis of congestive heart failure. She was discharged from the hospital and sent home to rest, waiting for the planned procedure on the 17th.

Except that the doctor’s office, looking at the pre-hospital rather than post-hospital blood work, cancelled it again.

I was very, very, very, very, very upset. After consulting with her primary care, the cardiologist promised to fit her in next week.

And then proceeded to give us the date of August 31st.

Which is not next week.

I’m still pretty upset, especially because the delay is what I feel got her into the diagnostic category of heart failure.

But, deep breath, and all that…

Fortunately, she is doing quite well now, although she has to take it very easy.

We are waiting for August 31st.

Third time’s the charm.

At least it better be.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “date.” Join us! Find out how here:  https://lindaghill.com/2016/08/19/the-friday-reminder-and-prompt-for-socs-aug-2016/

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